Author: thesleeplab

  • Sleep Culture

    I didn’t know there was an unspoken culture around sleep in New Zealand until I developed narcolepsy and started falling asleep at ‘not-normal’ times (e.g., while a friend is telling me a really important moment in their life story) in ‘not-normal’ places (e.g., waiting in line at the bank).

    I get that seeing someone start to fall asleep in the middle of the day while standing up is not the usual. Or finding it hard not to stare in a cafe when someone (me) ends up with my hand in my latte – oops – fell asleep.

    I get it. Most of us sleep in private.

    But when you have no control over when or where you fall asleep, the way sleep is ‘seen’ or understood by a culture becomes much more obvious.

    My take on this? The underlying message (and sometimes not so subtle message) I have picked up from others while living in NZ, is that falling asleep in the daytime is weird, it can make other people feel uncomfortable, it’s a sign of laziness, it signals some kind of fail (clearly can’t handle your sleep deprivation, look at me I can stay awake on 4 hours sleep), and it is rude. Falling asleep at times that are not night time in your bed, is generally frowned upon.

    So let’s jump to South Korea 2001.

    I need to time-stamp my story as it’s now a lifetime ago, and culture evolves and changes. So this is my experience of Korean culture at that particular moment in time.

    Full disclosure, I fell in love with Korea. So everything I say is sprinkled with generous doses of spicy, sparkly, kimchi flavoured love. I fell hard for just about every person I saw, was awe-struck by the language, singing, dancing, and the 24/7 charge-up and go attitude. Food was a whole other world in itself. I had no idea what I was eating most of the time (to begin with anyway) and loved almost every new and delightful dish put in front of me.

    Ok, so it wasn’t all rose-tinted spectacles. I absolutely hated my first job. I was teaching 4 year old kiddies (a completely terrifying age) to read, write and speak english when they didn’t even know how to hold a pencil. Epic fail.

    But then I secured a fantastic job where my students were all grown-ups (in full control of their writing tools) and would yell out to me “I love you, teacher” and “you are so beautiful” whenever I would walk into the classroom.

    (The 4 year olds would just chuck their pencils on the floor and say they were done).

    Anyway, I digress (what was the point of this story again…?) So, I loved Korea, even with a crappy job (and let’s be honest, I actually grew to love the 4 year olds too). And once I had found my sweet spot with a teaching job that made me feel like a superstar everyday, I didn’t really think things could be any sweeter.

    But there was more.

    The cherry on the top?

    The complete acceptance of my sleep condition.

    Ok, so people stared at me all the time. I was a weirdo just by nature of being a white skinned foreign body who spoke english. For some people, I was the first “foreigner” they had ever met. I was pointed at, prodded, and my hair was patted and stroked by older women. Sometimes I was the cause of total elation (walk into a room and people scream with excitement) or the cause of rage (lock eyes with an older gentleman who decides you are responsible for everything wrong with the world and worthy of a couple of well-aimed taekwondo kicks while we are here). There was never a shortage of attention.

    But when it came to falling asleep in weird places at weird times – I was completely ignored. Nobody cared. If anything, this was when I fitted in and was most accepted as I just joined all the other people who were sleeping in weird places at weird times.

    In Korea, I could just be sleepy me. It was completely liberating. And was when I started to realise that I didn’t feel accepted when I fell asleep at odd times in New Zealand. This was probably when I first started to pay attention to the “culture of sleep” and how we view sleep.

    And I think we have work to do.

  • Push & Pull

    I really love sleep. And I really hate it too.

    It’s my superpower. That thing I can do in a heartbeat. I feel passionately about it. And, it might just be my vocational calling too…

    It’s also the anchor weighing me down, the bag of bricks tied to my ankle as I struggle to keep my head above the waterline. It’s my battery drainer and interrupter of fun things.

    On the one hand, my body and my brain are constantly telling me I need to sleep. There’s this overwhelming pull to just lie down on the couch, maybe take a nap on the bed, perhaps lie down in this little patch of sunlight, just close my eyes for a moment in this comfy chair…

    Sleep feels like my most natural state.

    But NO! There’s this other part of me that is in fight mode. Fight to keep my eyes open. Fight to stand up when I really want to sit down. Fight to stay present in a conversation. Fight to stay awake.

    Because, let’s be honest, you miss out on a lot of life if you are on the couch all day everyday with your eyes closed.

    The fight part of me is really useful. It helps me live a reasonably normal life. But I’m not sure if “fight” is the state I want to be in all the time either!

    So, over many years of fighting – fighting sleep to stay awake – I have grudgingly come to accept that one of the most effective things in my managing narcolepsy toolkit is the one thing I have fought hardest against.

    Take a nap.

    Yep, that simple.

    And that hard.

    This has taken me a really long time to accept.

    I know, I know.

    It makes perfect sense. If you are sleepy, a nap is an excellent remedy. But I have been fighting the overwhelming desire to have naps for approximately 35 years. Apparently once you double down on something, it’s not easy to to turn off.

    As I write this down, I’m thinking, this really is a no brainer, Liesel! Why did you make it so hard for yourself?

    But try telling this to a sleep-deprived fighter, who is determined to stay awake.

  • Sleep seasons

    When it gets to spring, I start noticing changes to my sleep.

    Temperature

    • Trying to get the bedding right – too much blanket/not enough

    Light

    • The sun starts waking me up again

    Smells

    • Pollen gets me sneezing
    • the pie shop next door wakes me with meaty pie-ness

    Ability to sleep through the whole night.

    • It’s warmer so I wake more
    • Lighter in the evenings so I don’t want to go to bed, and then my sleep routine gets thrown out
  • Ignore my request

    Ok, so it’s gotten really cold tonight. This means I feel completely justified doing my favourite thing. The thing I do in the early evening after work every night.

    1. get into my comfies (you know, your comfies, your comfie old clothes that can still pass for outdoor clothes but are only one degree separated from pyjamas)
    2. wrap myself in blue blankie (you know, that trusted blanket that is big enough that it can envelop and cover every angle of even the largest adult plus it has to be really soft – even velvety may be an option)
    3. eat cheese and crackers and try not to get crumbs all through velvety blue blankie (almost impossible)
    4. play patience on my phone ( I don’t even like games but here we are)

    And I have done it again.

    Created the perfect storm for my battery to wind down at high speed, and guess who’s snoozing on the couch?

    That wasn’t a trick question.

    It’s MEEEEEE.

    Comfortable couch, clothes, and blanket + warm and cosy in both vibes and temperature + snacks nom nom nom + trying to concentrate on one thing + evening time after a day of work = and guess what, it’s not surprising that I’m asleep.

    What I have just described is a known set of variables that create an ideal environment for me to fall asleep.

    What I hadn’t thought of before this evening (with any clarity anyway), is that this is also the worst environment for me to make decisions.

    Yet, how often do I try?

    Wellllll, I’m on that couch pretty much every evening, so my guess is, a lot of decisions get attempted. And totally fail. And this is yet another narcolepsy insight that only occurs to me as one complete thought (like I said, with any clarity) after 30-odd years of making decisions half-awake/half-asleep from cosy couches.

    To give you a taste of the decision-making action, my classic request of my partner from earlier tonight was, “sweet treats or chips, maybe twisties or licorice please” as he was heading out the door. “From the little dairy. You can get them from the little dairy,” I said helpfully, when I knew he wasn’t heading in the direction of the supermarket. He looked at me. There was a pause. The eye contact from him was a little bit uncomfortable. His eyebrows did that questioning thing. That, “reeeeaallly? are you sure you reeeeeaalllly want to eat junk?” And of course, from the comfie, cosy corner of the couch, wrapped up like a little toastie cheese roll in my blue blankie, half awake/half asleep, hell YES, I was certain.

    I got the eyebrows again. And the suggestion that there were grapes in the fridge that carry a 5-star health rating, cos, errrr, like, they grow in the wilderness and are real food delights.

    So he left. And I settled in on the couch for a grunty game of patience, followed by a side of mahjong. I was actually playing really well, and started to wake up a bit in the process. So, in that surge of new energy moment, I got off the couch. Started to move around. Saw there were dishes to do in the kitchen, so decided to be productive.

    And as I got to washing the dishes, getting into that nice flow state, this is when I realised that I had been making bad decisions from the couch.

    Arghhh! What was I thinking???

    Not long before dinner I had a very good internal conversation between me and me, that had been very agreeable and definite in declaring a more healthy approach to eating. This new healthy me was the way forward. All the me’s had been in agreement. But of course, that was pre-comfie-blanket-couch zone.

    New rule for myself.

    Decisions need to be made standing up.

    Only standing up decisions will stand.

    Sit down decisions are not to be taken seriously. In fact, they should probably be ignored.

  • Surprise, I’m a sleep expert

    It feels funny calling myself a “sleep expert.” And first off, this is probably more about being a Kiwi than what being a sleep expert might entail/mean/hold me to.

    Us peeps from Aotearoa NZ are not so good at declaring what we are good at.

    Ok, hang on a minute, even that sentence was a typical Kiwi approach of understatement. Maybe we like to keep things a bit of a surprise? Not sure, but whatever it is, there is collective expertise in talking ourselves down rather than up.

    So, when you grow up with this mindset, it can be hard to own or name your talents. There’s this underlying cultural etiquette that you can feel in the vibes, the eyebrows, the break in eye contact, and mostly the vibes, that tells you to keep it low-key. The vibe is so strong that it can actually feel rude to name any of your talents.

    There is a lovely humbleness to this Kiwi attitude too, but only in healthy doses. As there should be nothing wrong with stating, “well, I have been doing this thing now for over half my life, and yeah, I have something useful to offer.”

    Oh wow, I just read what I wrote – there it is. The understated Kiwi expert! It sounds like downplayed mediocre at it’s very best.

    Ok, folks, it’s something I’m working on!

    So, now you have the context and I have laid down the vibes, back to the beginning.

    It feels funny, pecularious even (a wonderful made up word that refers to things that have a mixture of hilarity and well, hello, THIS is peculiar), to say I am a sleep expert. But I have come to the conclusion that I might just be one. Ha! The person with narcolepsy might know a thing or two about working with sleep.

    If you want to use a popular definition of expertise (that hit mainstream thinking with Malcolm Gladwell’s book Outliers published in 2008), then the idea of doing something for 10,000 hours will make an expert of you. Although adding up the hours doing something may not be the only ingredient in making an expert of someone, I can tick the sleep practice 10,000 hours box. Easy.

    I googled (as you do) the stats on how long human beings sleep in a lifetime. And on average, the average human, in the average kinda lifetime, will sleep for approximately one-third of their life. Or in other words, about 26 years, 9496 days or 227,916 hours. If these numbers are taken as a general rule of thumb, we are all on our way to expert status.

    I am going to go out on a limb here and say, I have discovered I have a certain flair for sleep activity (I know I do have a bit of an unfair advantage – but I like to think of narcolepsy as a talent – a). And as a result of this special talent, I have gleaned knowledge via lived experience, and many failed experiments managing sleep/wake activity. What better way to get good at something – even expert status – than trying, trying, trying again and again. Hours of practice, you might say!

    As someone who loves learning new things and absorbs new ideas quickly, I have struggled to say any one thing I do is my passion, or the thing I am an expert at. Funny, all this time, I have just quietly been struggling with sleep, testing out how to do sleep better, how to manage my energy, what I can tweak and change to become a finely tuned sleep machine.

    So, this is all a very long way of saying, hi, I’m Liesel and I have discovered I’m a sleep expert.